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Ed Johnson | Founder of Patients’ Own ME/CFS and Fibro Supplements

Meet Ed, Founder of Patients’ Own Nutrition




For me it’s personal.

Before becoming ill, I was very sociable and often physically active. I was a regular gym-goer, loved the outdoors and water sports and became a qualified sailing instructor. I successfully completed a three month snowboard instructor course in Canada and travelled extensively in North America with plenty of big nights out in between!

I was first diagnosed with Myalgic Encephalomyelitis (ME) which is also known as Chronic Fatigue Syndrome (CFS), in 2009. I made a full recovery within a few months and was able to return to my usual day-to-day life. Over the next three years, I was largely well but had numerous short-lived relapses, all due to attempting exercise.

It was in July 2012 that I had another relapse and never fully recovered. However, I have improved greatly and I’m now at a level where I can lead a full and enjoyable life thanks to the changes I made.

For the first nine months after my last relapse, I got worse. The pain, exhaustion and insomnia were unbearable. It was at this point that I started doing research. I began taking supplements, completely transformed my diet, stopped drinking, changed jobs, cut back on socialising and learnt to say “NO” to people. The impact of these changes was immediate.

I used an Excel worksheet to monitor my progress and I strongly recommend you do the same. It’s a great way to track progress and identify symptom triggers. I grade every day on a scale of 0-5. Zero is a REALLY bad day – as bad as it gets. Five is a day with no symptoms at all. The black line is a moving average which tracks the previous 30 days. As you can see, things really got better around March 2013. This is when I started taking supplements, overhauled my diet and totally changed my lifestyle.

Although supplements, diet changes and lifestyle management techniques are a huge help and something I can personally vouch for, they are not a cure. That’s why I created Patients’ Own Ltd as a social enterprise. I decided to donate 20% of profits to ME/CFS and Fibro biomedical research to help fund that search for something which can and will cure these diseases. We urgently need this type of research so we can go back to leading our lives without worrying about doing too much, or eating the wrong thing.

I also want Patients’ Own Nutrition to be a resource for patients who perhaps are unaware of the steps they can take to improve their ME/CFS or Fibromyalgia. The longer you wait, the more you jeopardise your chances of making a full recovery. If I knew in 2012 what I know now, I firmly believe I would have fully recovered a long time ago.

With increased research, the outlook for patients like us is better than ever before. By buying Patients’ Own Nutrition premium supplements, you are actively helping us get that bit closer to curing these diseases.

Please join me in creating an active, engaged community here on Patients’ Own Nutrition and via our social media channels. Invite your friends, family and other patients to contribute and share your ideas, suggestions and experiences.

You can browse the full range of Patients’ Own Nutrition supplements here and contact us here.